Well, dear readers, it continues to be a truly important, challenging, and inspiring time to be in our line of work. And as we reflect on 2022, we’re reminded that we simply couldn’t do what we do without you. Thank you for yet another year of insightful conversation and feedback that makes our work better — we can’t wait for more.
Happiest holidays from all of us at CH. We’ll see you in 2023!
Here at We ❤️ Health Literacy HQ, we’ve been talking a lot (a lot a lot) about equity. You probably have been too, our dearest readers! After all, the COVID-19 pandemic has highlighted longstanding inequities that shape health outcomes — inequities rooted in racism, ableism, and other types of discrimination. Talking about ways to center equity in our work is an important first step. But figuring out what equity looks like in real life? That can get tricky. Luckily, the Robert Wood Johnson Foundation (RWJF) has some visuals to help us do just that.
Back in 2017, RWJF crafted a simple illustration of 4 people riding bikes to explain the difference between equality and equity. (To sum it up quickly, “equality” means everyone gets the same kind of bike, while “equity” means everyone gets a bike tailored to their needs.) Tons of people told RWJF that the graphic helped them understand and explain the concept of equity, which is great. But the RWJF team didn’t stop there — they decided to make it even better!
This year, RWJF redesigned the graphic to better reflect the organization’s commitment to advancing health equity. They followed a human-centered design process by:
Based on audience feedback, RWJF both updated the bike image and created an all-new graphic with a crosswalk scene. The crosswalk image shows how curb cuts and accessible traffic signals help everyone cross the street safely. Both graphics paint a more nuanced picture, illustrating how barriers to access impact different groups of people. And RWJF added captions to make the main message crystal clear.
In her blog post about the new visuals, graphic designer Joan Barlow said she strives to approach all design challenges with empathy for her audience. We couldn’t have said it better ourselves — as you may know, we’re big fans of empathy in health comm. And we really appreciate how RWJF used human-centered design to make a helpful visual even better. Hats off!
The bottom line: The Robert Wood Johnson Foundation’s new graphics help us visualize the difference between equality and equity. And the RWJF team used a human-centered design process to create them!
Last month, we shared some ways to make sexual health content more inclusive and accessible. And today we’re following up with a few more tips to help you create inclusive sexual health resources. Let’s jump in!
Use gender-conscious language. This is our general recommendation for addressing gender in health comm. It means being thoughtful about using gendered language when gender is important — and using gender-neutral language when it’s not. (Other terms for this are gender-aware, gender-sensitive, and gender-inclusive language.) In sexual health comm, you tend to see a lot of gendered terms like “women’s health” and “male condom.” But those common phrases can leave transgender, nonbinary, and intersex people out of the conversation.
Opting for gender-neutral language in these cases can certainly make your materials more inclusive — and, as a bonus, it often helps streamline your content! Check out these simple swaps:
Of course, there are times when gender-conscious language takes a little extra time or space. For example, “if your partner has a penis” is more inclusive (and specific!) than “if your partner is male.” But it’s well worth the effort to show LGBTQ+ readers that you’re thinking about their needs and experiences.
Bring disability into the sexual health conversation. While we’re (slowly) starting to see more authentic disability representation in the media, harmful stereotypes linger — like the assumption that people with disabilities can’t or don’t have sex. In reality, of course, many people with disabilities have and enjoy sex! And disability can shape how people experience sexuality. For example, recent studies show that autistic people are more likely to identify as LGBTQ+. Chronic pain, mobility, and sensory issues can play a role in people’s sex lives, too. These factors can also make routine sexual health care like pelvic exams more challenging, especially if doctors don’t know how to accommodate their patients’ needs.
It’s important to recognize that people with disabilities are less likely to receive sexual education and face a higher risk of sexual assault. Because of ableism in our society, some people with disabilities may get the message that their comfort, their boundaries — and ultimately, their consent — don’t matter. As health communicators, we’ve got an opportunity to challenge these harmful messages and make readers with disabilities feel seen in our sexual health resources.
We know this is a lot to think about when writing, say, a single fact sheet. So here’s a simple but meaningful first step: Include images of people who use mobility aids (like wheelchairs or canes) and assistive devices (like prosthetics, ostomy bags, or hearing aids) in your materials. Then consider how you can include diverse perspectives and experiences of disability in your content. Which leads us to…
Talk to your audience! Yep, you knew it was coming, dear readers: When you’re creating sexual health resources, include your audience in the process. Ask them what they need to know about sexual health and what they like or dislike about existing resources. Take time to learn about their experiences with sexual health and sexuality. Getting input from your audience is always a good idea, even if there’s not much room in your budget.
The bottom line: As health communicators, we have an opportunity to create sexual health resources that help readers feel seen and valued.
In today’s 24/7 news cycle, it seems like every bit of news gets pushed into the spotlight and flashes across a million screens before we even have time to say, well, anything! But every now and then, big news is a bit slower leaving the nest. Such was the case earlier this week when particularly attentive Twitter users spotted a stealthy one-sentence update to the platform’s online rules: “Effective November 23, 2022, Twitter is no longer enforcing the COVID-19 misleading information policy.”
This update comes just days after Twitter’s owner Elon Musk announced he’d be reopening the accounts of users that had been suspended for hate speech, harassment, and spreading misinformation. Given how many people use social media as a source of news and information, this is certainly a setback.
It’s true that in terms of COVID-19 hospitalizations and deaths, we’re in a much better place now — due in large part to vaccines. But it’s also true that COVID-19 — and other viruses like the flu and RSV — continue to threaten public health. Our ability to respond to these threats depends on our ability to communicate scientific information honestly, accurately, and with integrity — and to give people the information they need to protect themselves and their communities.
As health communicators, we may not be able to control what happens in the digital town square. But there are some things we can do. First and most importantly, we can keep using health literacy strategies to clearly communicate science to our audiences. We can also:
If you have other ideas for these trying times, please share! As always, you can respond to this email or tweet us @CommunicateHlth. Trying to untangle the web of online misinformation and harmful content might seem daunting. (Okay, it definitely seems daunting.) But together, dear readers, we’ll press on — working and advocating for health comm that’s truthful, accurate, and empowering.
Because everyone deserves that.
The bottom line: Twitter’s COVID-19 misleading information policy is no more. Communicators of accurate information unite!
In September, FDA proposed new criteria for using the term “healthy” on food labels. Under the new rule, food products would need to have a certain amount of food from at least one of the food groups (like vegetables or grains) recommended in the Dietary Guidelines for Americans. Products would also have to meet specific limits for saturated fat, sodium, and added sugars. We’re sure you can figure out where our brains went: Will this new “healthy” claim on foods actually help people make informed choices at the grocery store?
We all know that product labels can be misleading. Labels are often designed to sell products, not to help people make decisions that will benefit their lives. If you’re a parent, you’ve almost certainly had to explain to your unamused, unimpressed children that — despite the name containing the word “fruit” — fruit snacks are actually candy! When it comes to people trying to make healthy choices, label lies and embellishments can be a real problem.
It’s also no secret that the way our foods are labeled is somewhat flawed. While many claims on food packaging (think “less fat” and “good source of fiber”) are regulated by FDA, they can be misleading, too. A bag of potato chips with “40% less fat” is still a processed food that’s high in calories and low in nutritional value. A “heart-healthy” breakfast cereal may be high in fiber, but it can still have tons of added sugars. And once you get to calling foods “clean” or “natural,” it’s basically the Wild West out there.
Of course, there is a label that tells it like it really is: the good old Nutrition Facts label! It’s not particularly exciting, but at least it’s honest about what’s in our food. Unfortunately, the Nutrition Facts label has a few problems of its own if you’re looking at it through a health literacy lens. In a word, it’s… confusing! To use it effectively, you need to understand numbers, like Percent Daily Value. You also need some pretty serious background knowledge to make meaning of those numbers. For example, you need to know that some foods high in total fat can be healthy if they’re low in saturated fat.
FDA also announced it will be working on a “front-of-package labeling system” that empowers people to make healthy choices by more effectively communicating nutrition info. While we don’t have any information yet on what this new labeling system might look like, we’ll be following the news closely — and we know you will, too. In the meantime, we’ll keep noodling on how we can improve our food labeling system. A look across the pond may offer some inspiration: For example, the UK has tried out a “traffic light” approach — a color-coding system that tells consumers how the product fares in terms of key nutrients like fat, sugar, and salt.
We won’t sugar coat it, dear readers — this one’s tricky. Even before getting into systemic problems or issues with nutrition science, we’re dealing with super complicated, number-heavy, very personal (ahem, what you put in your body) communication that’s supposed to be appropriate for everyone — people with very high and very low literacy and numeracy skills, people who need to follow a special diet and people who don’t, and so forth. It’s a tall order.
We certainly don’t have all the answers. So we’re curious to hear from you: What do you think needs to happen to improve food labels? How can we create understandable nutrition guidance that helps people make healthy choices? Respond to this email or tweet us @CommunicateHlth!
The bottom line: FDA has proposed new criteria for putting “healthy” on food labels, and it has us thinking about how to tame the trickiness of communicating nutrition info on food packaging.
As you know, dear readers, we’re all about inclusive health communication here at We ❤️ Health Literacy HQ. And one topic that we think could use a more inclusive approach is sexual health.
When it comes to sex, it’s easy to assume that everyone has the same general needs and generally experiences the same trajectory. If you think about it, we learn those expectations pretty early in life. When we hear comments like “One day, you’ll get married and have kids of your own,” or “When you get older, you’ll start having feelings for [boys/girls],” we learn that there’s a “normal” path to follow. But the fact is, those oversimplified narratives leave a lot of people out.
In reality, of course, human sexuality is incredibly diverse! And with reproductive rights and anti-LGBTQ+ legislation in the news, it’s more important than ever to create sexual health comm resources that reflect the diverse identities and experiences of our audiences. After all, when people see themselves represented in health materials, they’re more likely to connect with the messages and apply them to their own lives. So this week, we’re bringing you tips for creating inclusive sexual health content.
Tiny housekeeping note before we jump in: This post is part 1, meaning we’ll follow up with a part 2 (we just couldn’t fit it all into 1 post and we think you’ll see why) and maybe additional parts after that! This is a complex and nuanced topic, and we’re here for your opinions and insights — tweet us @CommunicateHlth or respond to this email with comments or ideas for future installments. Okay, back to our first set of tips:
Make the implicit explicit. When you’re writing about sexual health, ditch the euphemisms and offer clear info and action steps. This can look like lots of different things — calling body parts by their “real” names, for example.
Or take CDC’s behavioral recommendations for slowing the spread of monkeypox over the summer, which included mutual masturbation at a distance. And it wasn’t phrased as a vague “self-pleasuring activity” or some such. Rather, CDC said exactly what it meant: “Masturbate together at a distance of at least 6 feet, without touching each other.” How clear! And yes, you may need to explain “masturbate” in plain language depending on the context, but the point is to say what you mean. This makes your content more accessible to everyone, and it’s especially helpful for readers who didn’t have access to comprehensive sex education growing up — which, as you may know, is a rather alarming number of Americans.
Watch out for sneaky assumptions about sexual “milestones.” Many sexual health resources imply that there’s a normal-ish time to start having sex (usually in our teens or early 20s). These not-so-subtle assumptions can alienate people who start having sex later in life — or choose not to have sex at all. Plus, they may remind some readers of awkward or painful moments at the doctor’s office.
For example, asexual people have shared negative experiences with providers who made intrusive comments about their sexual history, framed their orientation as a mental health issue, or treated their asexuality as a medical problem to be solved. So watch out for language that points to a (non-existent) universal sexual experience, like “everyone” or “when you become sexually active.” Instead, frame having sex as a choice that adults can make at any age, based on their own needs and values.
Squash the shame. If there were ever a time to watch out for potentially shameful undertones/overtones/any-direction-tones from (well-intended) health content, this is it. Many of us grew up with all kinds of shame-based messages about sex. It’s easy to see how shame plays a role in religious messaging about abstinence and sexual “purity.” But purity culture affects all of us, and it shows up in public health messaging, too.
For example, some sexual health resources may imply that having sex with multiple partners is bad, or that certain people are at higher risk for STDs simply because of their LGBTQ+ identity. So think carefully about how you’re framing “risky” behaviors and watch out for those unintended shame messages — especially language that conflates a person’s identity and their behaviors. As an antidote to shame, when the context is right, consider emphasizing that sex is an important (and fun!) part of life for many people — and that’s something to celebrate.
And that’s where we’re going to leave it for today — stay tuned for part 2 coming up very soon!
The bottom line: Everyone deserves accessible information about sexual health! Try these tips to make your sexual health content more inclusive.
Here at We ❤️ Health Literacy HQ, we know clear communication makes everything better — but that won’t stop us from shouting it from the rooftops whenever we get the chance! And today, we’re talking about how health literacy and clear communication best practices can improve clinical trials.
The process of developing COVID-19 vaccines and treatments highlighted just how important clinical trials are to our health care system. It also revealed lots of gaps in how much people know about them and how they work. Using health literacy best practices in communication can help bridge that gap, and we can start by explaining clinical trials in plain language — from the basic definition to vaccine trial phases.
But it’s just as important to think about communication within clinical trials. That’s because using health literacy strategies can help build trust in the clinical trial process. The pandemic has shown how important it is that people not only feel it’s safe to enroll in clinical trials — but also that they trust the results of those trials. And you might (not) be surprised to hear, dear readers, that we’d say the best way to build trust is to communicate clearly and transparently about every step of the clinical trial process, starting with…
…enrollment! Research shows that when people don’t understand why clinical trials are important and how they work, they’re much less likely to consider participating in one — even if they could benefit from getting a trial treatment. Clear communication strategies can help reach and recruit people who might otherwise be left out of the process.
To be clear, there are lots of systemic problems that can keep people from enrolling in clinical trials — implicit racism and bias in the health care system, lack of access to health care and insurance, and a shortage of medical centers in rural areas that can facilitate clinical trials, to name a few.
Health literacy strategies alone won’t solve these issues. But they can help people understand exactly what participating in a clinical trial entails — including possible risks and benefits. Complex, jargon-y materials are a huge barrier to clinical trial participation, especially for people who have lower literacy skills or whose first language isn’t English. Making sure consent forms and other materials are easy to understand and translated into different languages can help address these weighty — and often undiscussed — barriers.
But clear communication doesn’t only help people enroll in trials. Clear instructions throughout the trial help participants follow trial protocols, like taking a drug correctly and scheduling regular visits with their trial doctor. This leads to more reliable results — not to mention less stress and better outcomes for participants.
Finally, communicating clinical trial results in a way that’s accessible to everyone can build trust in those results. And when people trust the results of trials, they’re more likely to make research-backed health decisions, which lead to better health outcomes. We can’t think of a better reason to shout (in plain language) about clinical trials from the rooftops.
The bottom line: Health literacy and clear communication strategies can improve all aspects of clinical trials — and that’s more important than ever.
Post about it: CommunicateHealth explains why using #HealthLiteracy strategies to communicate about — and within — clinical trials is so important. Check it out: https://bit.ly/3MLTnOZ
It’s October, which means Health Literacy Month is here! At We ❤️ Health Literacy HQ, we really ❤️ Health Literacy Month, and we can’t wait to celebrate with our fellow health lit advocates.
So this week, we’ve rounded up a few ideas for how to get involved. You can use these ideas in your own advocacy work — or share them with your audiences. After all, when it comes to celebrating health literacy, everyone’s invited to the party! Read on for Health Literacy Month inspo from your friends at CommunicateHealth:
These are just a few of our ideas for how to celebrate this Health Literacy Month. But we’d love to hear from you, dear readers — find us on social (LinkedIn and X, formerly Twitter) and tell us what you’re up to this month!
The bottom line: October is Health Literacy Month, and we’ve got some inspo to help you celebrate!
Post about it on X: #HealthLiteracyMonth is here! @CommunicateHlth’s got ideas to help everyone celebrate our very favorite thing. Take a look: https://bit.ly/3eg5F5m #HealthLiteracy #HealthComm
Well, dear readers, it appears that fall has arrived — somehow. And if you’re anything like us, as you sip your pumpkin spice something-or-other on a walk in the crisp autumn air while sporting your coziest sweater, you simply can’t stop thinking about the very exciting event that’s just around the corner… Health Literacy Month!
Yes, every October we come together with other advocates (that’s you) to celebrate the importance of health literacy — and to get others involved in our shared cause. And what a time to be a health literacy advocate! As you’ve no doubt noticed, the COVID-19 pandemic has really put health communication on the proverbial map. (We don’t know about you, but we’ve had much more success explaining our jobs than we did pre-COVID.)
For starters, the pandemic demonstrated on a grand scale that health comm — and therefore health literacy — can be a matter of life or death. It also laid bare the tremendous impact of social determinants of health — particularly those rooted in systemic racism and discrimination. This led high-profile national public health institutions to declare en masse that racism is a public health crisis and drew mainstream attention to conversations like this one on naming racism (not race) as a disease risk factor.
Essentially, the public health community has turned up the volume on explicit acknowledgement of how inequitable systems make it more likely that people in certain groups — especially communities of color — will get sick and stay sick.
Similar convos are happening in the health literacy space, with more and more folks considering the implications of how we’ve historically defined health literacy — as the ability to access, understand, and use health information. While it’s not wrong, taken at face value this definition does leave out the role of systems and organizations, focusing only on an individual’s skills.
To be clear, health literacy advocates have pretty much always known that the onus of making sure people can access, understand, and use health information is on us — you know, the people and organizations who create and provide that information. But it’s really encouraging to see more widespread acknowledgment of this very important truth — along with the shifts we’re seeing more broadly in public health.
Anyway, you might say we’re just a little bit extra excited about Health Literacy Month this year — it continues to feel like a profound time to be in this field. And next week we’ll be bringing you some ideas for celebrating Health Literacy Month. Stay tuned!
The bottom line: Health Literacy Month is almost here, and we’re reflecting on how things are evolving in the wonderful world of health literacy.
You probably know some people who’ve spent a lot of time during the pandemic cultivating new and fulfilling hobbies. A few of us at We ❤️ Health Literacy HQ, on the other hand, recently found ourselves staring down the reality that we must’ve spent most of our free time watching television.
This became clear during some proverbial water-cooler talk about the Emmy Awards, which aired Monday — turns out, we’d watched pretty much every featured show! Well, even the hardest-working health communicators need a little respite. (Though perhaps not that much respite.)
Anyway, on Monday, Michael Keaton took home the Emmy for best actor in a limited series or movie for his work in Dopesick. And chances are, dear readers, you have some pretty profound context for this show. It’s based on Beth Macy’s 2018 nonfiction book of the same-but-slightly-longer name: Dopesick: Dealers, Doctors, and the Drug Company That Addicted America. To be clear, the 8-part series is fiction — with dramatized details, composite characters, and the like. Unfortunately, the larger story it tells is anything but.
Dopesick chronicles the all-too-real beginning of the U.S. opioid addiction and overdose epidemic. Keaton plays a doctor treating patients in Appalachian mining country when OxyContin, Purdue Pharma’s new painkilling crown jewel, hits the scene in all its glory — its non-addictive glory, as Purdue’s claims had it. Dopesick gives a lot of screentime to what’s happening as Purdue’s owners, the now-notorious Sackler family, craft marketing strategies and incentivize their reps to make sure OxyContin levels the other painkillers of the day — in turn, making them gazillions of dollars. Those behind-the-scenes scenes are some of the hardest to stomach.
But then there’s not much here that’s easy to stomach — and that’s not a criticism of the show. We’re glad to see this story take center stage in an accessible format. It’s important that people understand how we got where we are today.
And where we are today is very much in an opioid overdose epidemic. That was true before COVID, and research suggests that opioid overdose deaths only increased during the pandemic due to stress, isolation, limited access to interventions, and other factors. We don’t have final numbers yet, but — thanks in large part to the skyrocketing number of fentanyl-related overdose deaths — they’re not likely to be good.
So yes, Dopesick is a tough watch, but it’s an important reminder of one of the most profound public health crises of our time. Obviously (and correctly!), the public health focus over the last few years has been on COVID. But let’s help each other keep the opioid overdose crisis top of mind. With almost 650,000 Americans dead from opioid overdoses between 1999 and 2021, it’s too important not to.
The bottom line: Dopesick explores the advent of the U.S. opioid overdose crisis. It’s a tough watch, but it’s worth it.